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Arnold School of Public Health


Alzheimer’s Disease Registry

The Alzheimer’s Disease Registry is a comprehensive statewide registry of SC residents diagnosed with Alzheimer’s Disease and Related Dementias (ADRD). As the nation’s most comprehensive registry of its kind, the Alzheimer’s Disease Registry has maintained a record of diagnosed cases of ADRD in the state since 1988. The Registry comprises multiple data sources, including inpatient hospitalizations, mental health records, Medicaid, emergency departments, memory clinics, chart abstracts, vital records, and long-term care evaluations. The Registry is maintained by the Arnold School of Public Health at the University of South Carolina, in cooperation with the SC Department of Health and Human Services, the SC Department of Mental Health, the USC School of Medicine, and the SC Revenue and Fiscal Affairs Office.

The goals of the Registry are to:

  • Maintain the most comprehensive and accurate state registry of  ADRD in the nation
  • Provide disease prevalence estimates to enable better planning for social and medical services
  • Identify differences in disease prevalence among demographic groups
  • Help those who care for individuals with ADRD
  • Foster research into risk factors for ADRD

The Registry is an invaluable data source to those interested in aging research that involves:

  • Alzheimer’s disease
  • Dementia
  • Types of dementia
  • Alzheimer’s disease prevention
  • Dementia prevention
  • Epidemiology of Alzheimer’s disease and related disorders
  • Risk factors for Alzheimer’s disease
  • Prevalence of Alzheimer’s disease
  • Mixed dementia
  • Vascular dementia
  • Dementia with Lewy bodies

South Carolina’s older adults and their caregivers ultimately benefit from the assistive services that evolve from the research that uses the Registry, including:

View the 2017 Annual Report (PDF Format) for the most recent full year of data available from all reporting sources.

Other states' Alzheimer's disease registries include: