Review of documents (recruitment materials, surveys, patient education documents, storyboards etc.).

• $50 per patient expert per 1,000 words, additional $100 for a synthesized report of the patient expert feedback.

• Minimum two patients.

• Recommend at least two to four patients provide feedback.

Review of multimedia content (videos or audio, etc.).

• $50 per patient expert per 30 minutes of content, additional $100 for a synthesized report of the patient expert feedback.

• Recommend at least two to three patients provide feedback.

Creation of graphic or video content for patient centered recruitment (examples can be found here) or results dissemination.

• $100 consultation fee.

• $75 per hour (minimum two hours expected).

• Not currently an option but coming in the future.

In-person or virtual presentation with Patient Engagement Studio:

• $1,000 per meeting.

• Includes pre-meeting consultation with PES director.

• Review of presentation with director feedback prior to presentation for patient centeredness and optimal patient engagement.

• Meeting with trained patient experts and researcher, includes one-time review of documents and/or multimedia content.

• Final report provided by the studio based upon feedback from the meeting.

* If meetings are with an established studio, there is no extra cost. If a new Condition- or Population-Specific Studio is requested, there is an additional $5,000-$8,000 fee for the recruitment and training of five to eight patient experts.

PES is consultant for grant/project.

• Administrative support and grant development.

  • $500 fee (upfront costs prior to grant development).

  • Letters of support provided by PES director and patient experts.

  • PES provides standard language about patient engagement in research.

  • Management of meetings, scheduling, etc., for PES.

• Meetings — $850 per meeting (for grant budgeting).

  • Minimum one meeting per quarter.

  • Includes pre-meeting consultation with PES director.

  • Review of presentation with director feedback prior to presentation for patient centeredness and optimal patient engagement.

  • Meeting with trained patient experts and researchers.

    • Summative evaluation of engagement efforts.

• PES is co-investigator on grant — one to three PES researchers included in grant as co-investigators (5-20% effort as needed).

  • Administrative support and grant development (grant budget includes 15% for PES project coordinator).

    • Letters of support provided by PES director and patient experts.

    • PES provides specific language about patient engagement in research and engagement expectations in the project.

  • $750 per grant budgeting meeting. Minimum one meeting per quarter.

    • Includes pre-meeting consultation with studio director.

    • Review of presentation with director feedback prior to presentation for patient centeredness and optimal patient engagement.

    • Meeting with trained patient experts and researchers includes review of documents and/or multimedia content.

* If meetings are with an established studio, there is no extra cost. If a new Condition- or Population-Specific Studio is requested, there is an additional $5,000-$8,000 fee for the recruitment and training of five to eight patient experts.

Integration of patient experts into research team - $15,000 to $40,000

• Consultation with research team.

  • Budget development.

  • Types of patient experts.

  • Letters of support provided by PES and patient expert.

• Recruit and train two to three patient experts on research methods, communication, and collaboration.

• Training for research team, including patients, on team building and trust building

• Grant developement

  • Co-development of the engagement plan and the evaluation plan for grant application purposes.

  • Co-development of the grant proposal, including research questions, objectives and methods.

• Act as liaison between research team and patient experts as necessary.

  • Establish communication pathways between patient experts and research team.

  • Administrative support between patient experts and researchers.

    • Scheduling.

    • Payment of patient experts.

• Formative and summative evaluations

Integration of patient experts and PES researchers into research team — $15,000 to $40,000 plus 10-20% effort for researchers.

• Consultation with research team.

  • Budget development.

  • Types of patient experts.

• Grant Development.

  • Co-development of the engagement plan and the evaluation plan for grant application purposes.

  • Co-development of the grant proposal, including research questions, objectives and methods.

• Recruit and train two to three patient experts on research methods, communication, and collaboration

• Training for research team ,including patients, on team building and trust building 

• Coordination of engagement

  • Establish communication pathways between patient experts and research team.

  • Administrative support between patient experts and researchers.

    • Scheduling.

    • Payment of patient experts.

• Implementation of project.

  • Co-development of research material (e.g. consent forms, surveys, interview guides).

  • Feedback on research implementation strategies (e.g. recruitment efforts, dissemination material).

  • Co-creation of patient centered graphic or video for dissemination of results.

• Formative and summative evaluations.

• Patient-centered dissemination of results.

• Manuscript preparation and conference presentation support.

• Services, fees and processes available from PES director.

• Fees for those researchers within the Academic Health Science Center (HSC) are generally waived prior to external funding is obtained.
• For HSC researchers who are looking to add the Patient Engagement Studio into their grant application budgets, please contact Director Ann Blair Kennedy for more information.
• For individuals outside of the HSC, fees begin at $8,000 but may be negotiated.